AFTD (The Association for Frontotemporal Degeneration)
The Association for Frontotemporal Degeneration (AFTD) is the leading nonprofit working to improve the quality of life of people affected by frontotemporal degeneration (FTD) and to drive research to bring hope for a world with compassionate care, effective support, and a future free of this disease.
FTD brings progressive changes in behavior, personality, language, and/or movement. Today, there are no disease-modifying treatments, and there is no way to prevent or cure this disease. On average, even receiving an accurate diagnosis takes 3.6 years. Advancing research into FTD is likely to have benefit for ALS, Alzheimer’s, and other forms of neurodegenerative disease, and we welcome partnership and support from others looking to making a difference in the lives of the more than 60,000 in this U.S. alone who are affected by FTD.
AFTD’s mission is to improve the quality of life of people affected by FTD and drive research to a cure. We work every day to advance:
- Research. We promote and fund research toward diagnosis, treatment and a cure.
- Awareness. We stimulate greater public awareness and understanding.
- Support. We provide information and support to those directly impacted.
- Education. We promote and provide education for healthcare professionals.
- Advocacy. We advocate for research and appropriate, affordable services.
AFTD has a dedicated full-time staff of over two dozen, and its Board of Directors and Medical Advisory Council is passionately devoted to hastening a future free of FTD. For more information, visit